From Charity to Science, from Morality to Ethics
Conflicts in Social Intervention in Pediatric Palliative Care Today
DOI:
https://doi.org/10.14422/rib.i18.y2022.003Keywords:
pediatric palliative care, end of live, health social work, bioethics, social work, ethical conflictsAbstract
Health Social Work finds part of its origins in supporting ill people and at the end of life. It has been more than a century since the pioneers of the profession began to reflect on the values, techniques and ethical framework that should guide intervention, and even today there are more questions than answers.
The profession is currently facing new challenges and conflicts that force us to deliberate and question aspects of our daily chores. The biopsychosocial person-centered model is still under construction and requires a critical attitude towards the different systems of the Welfare state and the delusion of integrated care, that although there are more efforts every day, it is still not real.
This article aims to address some of the conflicts faced from three experiences of health social workers in a complex chronic patient support and palliative care unit.
Downloads
References
Busquets, E. (2009). Cap a la creació d’una bioètica social. Quaderns d’acció social i ciutadania, (6), 32-34.
Canimas, J. (2009). Per què és important l’ètica avui? Quaderns d’acció social i ciutadania, (6), 26-31.
Colom, D. (2010). El trabajo social sanitario. Atención primaria y atención especializada, teoría y práctica. Siglo XXI.
Gallardo, M. (2020). El modelo particular de Estado del Bienestar de España, y las nuevas necesidades que hoy lo demandan. Revista de Trabajo Social, 22(2), 123-146. https://doi.org/10.15446/ts.v22n2.82030
Gilligan, C. (2013). La ética del cuidado. Fundació Víctor Grífols i Lucas.
Jones, L. (2012). Prevalence and risk of violence against children with disabilities. The Lancet, 380(9845), 899- 907. https://doi.org/10.1016/S0140-6736(12)60692-8
Martin, J. (2019). Cap a l’autonomia de l’adolescent: model d’acompanyament pels professionals assistencials. Universitat de Barcelona.
Montero, F. y Morlans, M. (2009) Para deliberar en los comités de ética. Fundación Dr. Robert.
NASW. (2004). NASW standards for palliative and end of life care. https://www.socialworkers.org/LinkClick.aspx?fileticket=xBMd58VwEhk%3D&portalid=0
Navarro, S. (2015). Aspectos éticos en la atención paliativa pediátrica. Bioètica i debat, 21(76), 8-12.
Ríos, P. (2019) Aportaciones de las teorías relacionales y feministas al Trabajo Social. Cuadernos de Trabajo Social, 33(1), 43-52. https://doi.org/10.5209/cuts.62991
Rosenberg, A., Bona, K., Coker, T., Feudtner, C., Houston, K., Ibrahim, A., Macauley, R. Wolfe, J. y Hays, R. (2019). Pediatric palliative care in the multicultural context: findings from a workshop conference. Journal of pain and symptom management, 57(4), 846-855. https://doi.org/10.1016/j.jpainsymman.2019.01.005
Save the Children. (2020). Quant mesura la infància a Catalunya? https://www.savethechildren.es/sites/default/files/2021-01/Save%20the%20Children%20-%20Quant%20mesura%20la%20inf%C3%A0ncia.pdf
Small, N. (2001). Social Work and Palliative Care. British Journal of Social Work, 31(6), 961-971. https://doi.org/10.1093/bjsw/31.6.961
Wiener, L., McConnell, D., Latella, L. y Ludi, E. (2013). Cultural and religious considerations in pediatric palliative care. Palliative Support Care, 11(1), 47-67. https://doi.org/10.1017/S1478951511001027
Downloads
Published
How to Cite
Issue
Section
License
The authors of articles published in Revista Iberoamericana de Bioética retain the intellectual property rights over their works and grant the journal their distribution and public communication rights, consenting to their publication under a Creative Commons Attribution-NonCommercial-NoDerivates 4.0 Internacional. Authors are encouraged to publish their work on the Internet (for example, on institutional or personal pages, repositories, etc.) respecting the conditions of this license and quoting appropriately the original source.