The End of Life when Life Begins: Perinatal Palliative Care

Authors

DOI:

https://doi.org/10.14422/rib.i18.y2022.001

Keywords:

perinatal palliative care, fetal death, neonatal death

Abstract

The goal of perinatal palliative care is to prevent and treat the physical, psychological, social and spiritual distress of fetuses and newborn infants with life-threatening or life-limiting conditions, and their families. This interdisciplinary approach begins with diagnosis (often during pregnancy) and continues into death and bereavement. Although these families experience emotional distress, most parents value the opportunity to love, meet and care for their child positively.

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References

Arnáez. J., Tejedor, J. C., Caserío, S., Montes, M. T., Moral, M. T., González de Dios, J., García-Alix, A. y Grupo de Trabajo sobre Dificultades Bioéticas en Neonatología. (2017) La bioética en el final de la vida en neonatología: cuestiones no resueltas. Anales de Pediatria, 87(6), 356.e1-356.e12. https://doi.org/10.1016/j.anpedi.2017.03.014

Balaguer, A., Martín-Ancel, A., Ortigoza-Escobar, D., Escribano, J. y Argemi J. (2012). The model of Palliative Care in the perinatal setting: a review of the literature. BMC Pediatrs, 12(25). https://doi.org/10.1186/1471-2431-12-25

Boletín Oficial del Estado. Ley orgánica 8/2015, de 22 de julio, modificación del sistema de protección a la infancia y a la adolescencia, “Ámbito e interés superior del menor” Capítulo I, Artículo 2.

Cuidados paliativos perinatales. Cuando la vida de vuestro hijo, aún no nacido, será breve. (2016). Dirección General de Planificación en Salud. Departamento de Salud. Generalitat de Catalunya. https://scientiasalut.gencat.cat/bitstream/handle/11351/3324/cuidados_paliativos_perinatales_2016_cas.pdf?sequence=2&isAllowed=y

Guon, J., Wilfond, B. S., Farlow, B., Brazg, T. y Janvier, A. (2014). Our children are not a diagnosis: the experience of parents who continue their pregnancy after a prenatal diagnosis of trisomy 13 or 18. American Journal of Medical Genetics, 164(2), 308-318. https://doi.org/10.1002/ajmg.a.36298

Kuebelbeck, A. y Davis, D. L. (2011). A Gift of Time: Continuing your Pregnancy when your Baby’s Life is Expected to be Brief. John Hopkins University Press.

National Consensus Project for Quality Palliative Care. (2018). Clinical Practice Guidelines for Quality Palliative Care (4.ª ed.). National Coalition for Hospice and Palliative Care. https://www.nationalcoalitionhpc.org/ncp

Perinatal Hospice & Palliative Care. https://www.perinatalhospice.org

ACOG Committee Opinion, Number 786. (2019). Perinatal Palliative Care. Obstetrics Gynecoly, 134(3), e84-e89. https://doi.org/10.1097/AOG.0000000000003425

Wool, C., Limbo, R. y Denny-Koelsch, E. M. (2018). “I Would Do It All Over Again”: Cherishing Time and the Absence of Regret in Continuing a Pregnancy after a Life-Limiting Diagnosis. Journal Clin. Ethics, (29), 227-236.

Cuidados paliativos perinatales

Published

2022-03-08

How to Cite

Martín-Ancel, A., & Mazarico, E. . (2022). The End of Life when Life Begins: Perinatal Palliative Care. Revista Iberoamericana De Bioética, (18), 01–14. https://doi.org/10.14422/rib.i18.y2022.001