The Value of Integrated care in Paediatric Place-of-Death Decision-Making. A Case Study

Authors

  • Marta Balsells Costa Hospital de la Vall d’Hebrón
  • Pau Miquel Diego Hospital Sant Joan de Déu
  • Lídia Rodríguez Crespo Hospital de la Vall d’Hebrón
  • Carolina Castellà Vera Hospital de la Vall d’Hebrón
  • Silvia Asenjo Ponce de León Hospital Sant Joan de Déu
  • Marta Bullich Molins Hospital Sant Joan de Déu
  • Andrés Morgenstern Isaak Hospital de la Vall d’Hebrón
  • Sergi Navarro Vilarrubí Hospital Sant Joan de Déu

DOI:

https://doi.org/10.14422/rib.i20.y2022.004

Keywords:

paediatric palliative care, place of death, cultural competence, spiritual care

Abstract

Intermediate care centres are intended to be a safe alternative to hospitalization under a comprehensive and transdisciplinary care model that can respond to highly complex end-of-life situations, also in paediatrics. We present a case study of an end-of-life care process in which continuity of care between two different levels of care — a paediatric palliative care unit of an acute hospital and a paediatric intermediate care centre — made it possible to provide quality palliative care to the patient and her family. Based on this, we suggest that decision-making about the place of death should be individualized, respecting the desired place of death for the patient and family, in order to ensure quality care in the best possible environment.

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Author Biographies

Marta Balsells Costa, Hospital de la Vall d’Hebrón

Unitat d’Atenció Pal·liativa Pediàtrica Integral

Pau Miquel Diego, Hospital Sant Joan de Déu

Centre d’Atenció Intermèdia La casa de Sofía

Lídia Rodríguez Crespo, Hospital de la Vall d’Hebrón

Unitat d’Atenció Pal·liativa Pediàtrica Integral

Carolina Castellà Vera, Hospital de la Vall d’Hebrón

Unitat d’Atenció Pal·liativa Pediàtrica Integral

Silvia Asenjo Ponce de León, Hospital Sant Joan de Déu

Centre d’Atenció Intermèdia La casa de Sofía

Marta Bullich Molins, Hospital Sant Joan de Déu

Centre d’Atenció Intermèdia La casa de Sofía

Andrés Morgenstern Isaak, Hospital de la Vall d’Hebrón

Unitat d’Atenció Pal·liativa Pediàtrica Integral

Sergi Navarro Vilarrubí, Hospital Sant Joan de Déu

Centre d’Atenció Intermèdia “La casa de Sofía

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centros de atención intermedia

Published

2022-10-27

How to Cite

Balsells Costa, M., Miquel Diego, P., Rodríguez Crespo, L., Castellà Vera, C., Asenjo Ponce de León, S., Bullich Molins, M., Morgenstern Isaak, A., & Navarro Vilarrubí, S. (2022). The Value of Integrated care in Paediatric Place-of-Death Decision-Making. A Case Study. Revista Iberoamericana De Bioética, (20), 1–15. https://doi.org/10.14422/rib.i20.y2022.004